Browsing by Author "Pandey, Kabita"
Now showing 1 - 2 of 2
Results Per Page
Sort Options
Publication Burden of Care among Mothers Having Children with Down Syndrome(Nepal Health Research Council, 2022) Mishra, Tulashi Adhikari; Pandey, Kabita; Bhujel, Bishnu; Adhikari, ShovaAbstract Background: Down syndrome is the most common chromosomal disorder associated with mental retardation. Parents who are the primary caregivers of a child with a disability face numerous challenges in their day-to-day life. The objective of the study was to find out the burden of care among mothers having children with down syndrome. Methods: A descriptive cross-sectional study was carried out among 96 mothers having down syndrome children enrolled in the Down Syndrome Society, Nepal. Purposive Sampling technique was adopted for data collection. The Modified Caregiver Strain Index tool was used to collect data through interview. Data were collected from June 14, 2021 to August 1, 2021, which was analyzed by using descriptive and inferential statistics. Results: Findings revealed that majority of the mothers (77.1%) had high level of burden of care. Majority (89.6%) of the mothers involved in the study were always overwhelmed about their child’s conditions. More than half (55.2%) of the mothers were always financially strained in care giving, 57.3% had always done work adjustments and 60.4% of mothers always had emotional adjustments to be made. Similarly, 53.1% participants always felt that care giving was a physical strain. Burden of care was significantly associated with the age of delivery (p value= 0.008). Conclusions: The study concludes that mothers having children with down syndrome tend to have high level of burden of care and it is associated with the age at delivery. Therefore, health care providers including concerned authority are recommended to conduct different programs to support the caregivers in order to reduce their burden as well as to raise awareness program related to preventive measures of down syndrome in community. Keywords: Burden of care; down syndrome; mothersPublication Parental Satisfaction with the Care of Admitted Children in a Tertiary Level Hospital(Nepal Paediatric Society (JNPS), 2023) Pandey, Kabita; Shrestha, Sanjana; Shrestha, SaralaAbstract: Introduction: The quality care is an essential aspect of hospital service in improving health outcomes. Quality of children’s care can be assessed by measuring the parental satisfaction. Methods: A descriptive cross-sectional design was used. Non-probability purposive sampling was used to select 167 parents of children who were admitted in Kanti Children Hospital. Data were collected by interviewing either the father or mother as roomed-in by using the Pediatric family satisfaction questionnaire (PFSQ) containing three domains as modified to suit to local context. Data were entered, cleaned and analyzed in statistical package for the social sciences SPSS version 22. Chi-square test and Spearman rank correlation coefficient were used to analyze the data. Results: Findings revealed that the overall satisfaction among majority (59.9%) of the respondents was low. However, domain wise, almost all (94.6%) respondents were satisfied in medical care followed by 89.2% in nursing care and lowest proportion (42.5%) was satisfied with hospital services and accommodation. Parental overall satisfaction was significantly higher among those admitted in surgical unit (p = 0.00) and among those with days of hospitalization as more than 6 days (p = 0.01). Findings also showed a moderate correlation between the satisfaction with nursing care and medical care (r = 0.64). Conclusions: Parents tend to have low satisfaction with the care provided to the admitted children whereas domain wise satisfaction is high in medical and nursing care and low in hospital services. Therefore, in order to increases the parental satisfaction, more focus should be given to improve the quality of hospital services and accommodation.