Publication:
Burden of Care among Mothers Having Children with Down Syndrome

creativeworkseries.issn1999-6217
dc.contributor.authorMishra, Tulashi Adhikari
dc.contributor.authorPandey, Kabita
dc.contributor.authorBhujel, Bishnu
dc.contributor.authorAdhikari, Shova
dc.date.accessioned2025-08-06T07:00:01Z
dc.date.available2025-08-06T07:00:01Z
dc.date.issued2022
dc.descriptionTulashi Adhikari Mishra Maharajgunj Nursing Campus, Institute of Medicine, Tribhuvan University, Kathmandu Nepal Kabita Pandey National Academy of Health Sciences, Bir hospital, Nursing Campus Bishnu Bhujel Hope Intl College, Satdobato, Lalitpur Shova Adhikari TU, Teaching Hospital, Kathmandu
dc.description.abstractAbstract Background: Down syndrome is the most common chromosomal disorder associated with mental retardation. Parents who are the primary caregivers of a child with a disability face numerous challenges in their day-to-day life. The objective of the study was to find out the burden of care among mothers having children with down syndrome. Methods: A descriptive cross-sectional study was carried out among 96 mothers having down syndrome children enrolled in the Down Syndrome Society, Nepal. Purposive Sampling technique was adopted for data collection. The Modified Caregiver Strain Index tool was used to collect data through interview. Data were collected from June 14, 2021 to August 1, 2021, which was analyzed by using descriptive and inferential statistics. Results: Findings revealed that majority of the mothers (77.1%) had high level of burden of care. Majority (89.6%) of the mothers involved in the study were always overwhelmed about their child’s conditions. More than half (55.2%) of the mothers were always financially strained in care giving, 57.3% had always done work adjustments and 60.4% of mothers always had emotional adjustments to be made. Similarly, 53.1% participants always felt that care giving was a physical strain. Burden of care was significantly associated with the age of delivery (p value= 0.008). Conclusions: The study concludes that mothers having children with down syndrome tend to have high level of burden of care and it is associated with the age at delivery. Therefore, health care providers including concerned authority are recommended to conduct different programs to support the caregivers in order to reduce their burden as well as to raise awareness program related to preventive measures of down syndrome in community. Keywords: Burden of care; down syndrome; mothers
dc.identifierhttps://doi.org/10.33314/jnhrc.v20i4.4415
dc.identifier.urihttps://hdl.handle.net/20.500.14572/1305
dc.language.isoen_US
dc.publisherNepal Health Research Council
dc.titleBurden of Care among Mothers Having Children with Down Syndrome
dc.typeArticle
dspace.entity.typePublication
local.article.typeOriginal Article
oaire.citation.endPage982
oaire.citation.startPage977
relation.isJournalIssueOfPublicationbab336f9-a344-4947-87ff-8532a3808cc5
relation.isJournalIssueOfPublication.latestForDiscoverybab336f9-a344-4947-87ff-8532a3808cc5
relation.isJournalOfPublication40bd2739-8b19-447c-be60-723a1bdd1dcd

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